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Author Topic: Getting off the pills-Dont read this if you feel really anxious.
Sarah
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Post Getting off the pills-Dont read this if you feel really anxious.
on: February 18, 2013, 14:41
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so it's been about a month that I quit Paxil, an antidepressant.
I reduced over a long time. Apparently not long enough.
Like I said elsewhere, I wanted to quit to have a child soon. I felt fine for 2-3 week s after being completly off.
Now, not so much. I have insomnia, chest pains, palpitations, tingling, racing toughts, worries, low apetite and lots more.
I was curious as to what is causing all this. Am I just anxious like I was before? Or is it the withdrawl? Or something else? If it is the withdrawl, can I handle it?
So I went on a forum called Paxil Progress where everyone is strugling and someone mentioned that after 5 months off the paxil he suddenly had wierd symptoms. Everybody seemed to think it was withdralw. 😕
I`m prety skeptic; shouldn't it be sooner? If not, what is going to happen to me? Have I damaged my brain like a heroin addict?
To add to that, there is a pdf that is supposed to help you get through withdrawl. They say it takes a year where my doctor said a few weeks top.
They also say to question every drug and ask for second and third opinions about them to various professionnal becasue they are only human and make mistakes.
THAT IS EXACTLY WHAT I WAS DOING AND WHAT MY THERAPIST TOLD ME NOT TO DO!
That I should stop worrying that the doctors don't know and that I have to stop looking for bad stuff about meds becasue it feeds my fears.
I also think Paul is not a fan of seeking reasurance all the time, which is what I' ve been doing lately.
I feel I can't trust anyone. Isn't it believed by some that rhino horn is good for potency? And that is ludicrus, so how can I belive that a drug hasn't messed me up permenantly? How can i be sure that a new one will be safe for me when paxil used to be considered safe?
How can I manage all the contradictions I find when trying to be informed?
Because I don't want to take something that will harm my baby if I have one but I can't handle this sort of feeling much longer. I'm trying not to fight it, to let it come and leave me. But if it's withdrawl, am I just cursed to feel terrible and scared all the time?
As you can see, I'm starting my week quite erratically.
I know you guys don't know who I am for real and can't offer medical advice.
Has anyone ever had withdrawl tough? How long does it last for real? It might not even be that. I might just be anxious again.
I'm sorry for rambling. Not sure if it helps but it's an outlet.
ok take care. One at a time.

David
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Post Re: Getting off the pills-Dont read this if you feel really anxious.
on: February 23, 2013, 15:03
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Sarah,
I had the same issue with Paxil. I was on it for many years, tapered very slowly and was completely fine for about three months. I had to go back on and actually add a bezo to it to get it to work the same. My doctor says it sometimes has this effect on some it's called rebound anxiety. I think in my case I had been on it so long and it was effective that I didn't build up enough tools to handle the fact that my Panic Disorder was really even there. I think that is something that everyone no matter what stage they are in with these disorders has to accept in order to continue healing. That these feelings even though not from a real physiological medical emergency as they feel are real and we need to learn educate ourselves and accept what we have and constantly move towards a better place. My belief is that there are up sides and down sides of medication but it should not be seen as all evil or the only answer. For all that paxil may have contributed to my rebound anxiety it also helped me for many years. As far as wanting children I can understand your concern, I would talk to your doctor for other options and use all the support you can to get though the difficult times. I find the more things I can build my confidence with that yes I have this disorder but I'm going to do this anyway the more positive I feel about myself. I don't even hide it at work or with family I will talk about it and not be afraid to say yes I have this disorder but it is not all that Iam. This probably didn't help much but your alone out there.

Sarah
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Posts: 94
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Post Re: Getting off the pills-Dont read this if you feel really anxious.
on: February 24, 2013, 15:17
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Thanks for the reply.
My doctor also thinks its Rebound Anxiety. I think my last tapering was too fast. I am aware that I will probably have some anxiety outbursts all my life. I had some even on the paxil sometimes.
Maybe I'll re-instate just a little to tapper off slower still...

I'm seeing a psychiatrist next week who specialises in treating pregnant women. It's not really a consultation; more of a question period to ask him about the effects of anxiety vs medication on a potential pregnancy. I'll probably be more informed then and from a person who deals wth this exact issue all day.

Also, I'm not going to that horrible paxil forum again. Those people are a bit paranoid, even by anxiety standards. I'm sure not all of them are and they probably just wanted to help, but it's really just making me more scared to be patronised because I trust my doctor.
Wich is a bit ridiculous.
I hope you made a typo, because you end with "you're alone out there", which is not true because you answered me and this forum exists. I think you ment "you are not alone."
I know I am not alone, and it's a great relief.

David
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Post Re: Getting off the pills-Dont read this if you feel really anxious.
on: February 24, 2013, 22:52
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Sarah
Yes that was a typo. That would be pretty awful for me to say. I need to read before I send. I a gree about the paxil progress site its the exact same site that made me think I had to get off of paxil. They mean well but they tend to be alarmist. They would blame global warming on paxil if they could. Everything they advocate is written on the bottle and pamplets you get from the pharmacy, about how you should not stop taking this drug abruptly. This goes for any psychoactive drugs or even asprin if you take it daily. Hope you are doing well and good luck with the pregnancy. We just had our first 9 months ago, its a new stress but def. worth it (except at 4 a.m.).

Michelle
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Post Re: Getting off the pills-Dont read this if you feel really anxious.
on: February 25, 2013, 02:28
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Hey Sarah,

Are you feeling any better? Also thanks for the "don't read if you're anxious" warning, that was thoughtful. I've heard paxil can be tough to come off but not impossible. Just be careful what you read in those forums and take it with a grain of salt. A lot of the people on there are either terrified and will feed your anxiety or think they're doctors and can be giving out the wrong info. If you've gotten answers from your doc try to stay away from those! Stay here instead 😉 Hope you're doing alright.

Sarah
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Posts: 94
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Post Re: Getting off the pills-Dont read this if you feel really anxious.
on: February 25, 2013, 19:43
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You guys! Thanks so much.
I feel a bit better since last friday. Still anxious but much more myself. I'm nervous for my meeting with the doctor. I hope I don't come off as a paranoid freak. I have printed out lots of fact sheets to show the contradictions in the information available to consumers. Like one study says this and the other disproves it while another is inconclusive. I want to look credible and be taken seriously, not come off as a hysterical lady who gets carried ways with he toughts, which is kind of what I feel like.
Sigh...
I have to use my acceptance muscles. Be calm, take my time when I speak, not ramble and also listen. I have high expectations for this meeting. I have to accept if it doesn't go as planned too...
Can't control everything.

Sarah
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Post Re: Getting off the pills-Dont read this if you feel really anxious.
on: February 28, 2013, 01:52
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Update!
Well, I have been advised to reinstate the meds, at least for now.
The doctor is convinced that they are not dangerous if I get pregnant. He sees pregnant women everyday and a lot of them use antidepressants. According to him, the mother's comfort is most important for the baby. He aknowledged the reaserch I found but said there are as many more that disprove them so the inconclusive aspect makes the doctors recomand that treatment is maintained through the pregnancy.
NOW
DON'T USE THIS INSTEAD OF MEDICAL ADVICE FROM YOUR DOCTOR if you have a similar fear as me. Maybe your case is different.
I'm still nervous about the stuff that the other people said on the other forum. They really scared me becasue they validated my deepest fears.
But I'm not pregnant now and there is a chance I can't even be pregnant, so we'll see then. Until that time, I'm waitng another week and then I'll start the treatment again if nothing changes.
I felt like a failure for not being able to feel better on my own, but the doc told me that like diabetes, anxiety may need some drugs to improve but I also have to help myself. Yoga, meditation, breathing and counseling all contribute to my health. I will not improve with just drugs. I have to work at it.Just like a person has to maintain their sugar level with food and exercise.
Still painfull to realise I might need them, maybe for good. Good thing is 5 health professionals agree that I'm not endangering a future baby if I do take them.

Sarah
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Post Re: Getting off the pills-Dont read this if you feel really anxious.
on: March 5, 2013, 01:22
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Hey guys!
More update.
I gave in sunday. I took some Paxil again. I figured that since I was not pregnant now anyways, I could do no harm to a baby now. Also, I know how I react to paxil. I don't have any side effects, other than sometimes wierd dreams and a little weight gain.
I am however terrified of the long term effects it may have on me, but I'm even more terrified to live like I was living. I know I am supposed to accept the symptoms, but I could hardly function. Sleep deprivation is not working very well for me.
Now. It has only been 2 days and the dose is minimal; it's 5mg, what I was taking in december. But I'm already a bit better. Most probably not because of the paxil since it takes time to work, but because I made a choice. I hope I can manage at that dose.
Then, when I'm ok, I'll try a different antidepressant. Even though the specialist said it was ok to take Paxil while pregnant despite the warnings, I'm still a bit scared of the warnings. They are everywhere. Very difficult to believe the doctors although I know I have to.
My pregnant friend does not have anxiety, but she did have some concerns about what is safe and what is not. Her doctor refered her to a website USED BY DOCTORS to ask questions to their peers. Here is what I found aboutt my own concerns.

Heart defects are relatively common in the population, as approximately 1 in 100 babies will be born with one, regardless of exposure.(...)However, accumulated evidence from different types of studies does not suggest that paroxetine is associated with an increased risk of heart defects.

The whole article, if you are interested.
http://www.motherisk.org/prof/updatesDetail.jsp?content_id=931

Again, that is what the pros have told me. Why is it so hard to believe them?
I know worrying is not a protection.
Blegh...
I need to return to normal before I can think clearly. I could not be a good mom in this state anyways.

Thanks for reading!

Cindy
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Post Re: Getting off the pills-Dont read this if you feel really anxious.
on: March 6, 2013, 03:12
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Hi Sarah - Sorry to hear you are having a hard time with all this. I tried to go off Celexa 10 years ago when conceiving my first child. I ended up losing weight (when I should have been gaining) during the 2nd & 3rd month of pregnancy. I had horrible insomnia as well and just couldn't get by without the medication. My doctor at the time told me the the risks of my severe anxiety could put the baby in more danger than the medication. I ended up going back on the lowest dose of Celexa that I could handle.
I am happy to say that I now have two healthy daughters - 6 and 10. I was on the medication (SSRIs) with both pregnancies.
I was finally able to come off SSRIs this past year - I'm starting to struggle more now, but hoping I can gain some more insight from Paul & others on this site to utilize coping skills when needed.

Good luck to you!

Sarah
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Posts: 94
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Post Re: Getting off the pills-Dont read this if you feel really anxious.
on: March 11, 2013, 19:51
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Thank you Cindy!
I have read so much on pregnancy and SSRIs that I have a hard time believing what all 5 health professionals have told me.
Still on 5mg of paxil now. I'm a bit better, but not out of the deep end yet. I still plan to switch to celexa soon, but I want to consult my doctor on the best way to transition without too much symptoms. I really hope it works well on me.
I went to see my psychologist. I told her how ashamed and scared I was to take a drug to feel better. She told me something funny. ''If you don't take the pill, you wil not be a better person for it; you won't have a medal or recognition from anyone that you succeeded in beating anxiety on your own. You will feel bad and you'll be the one who suffers without any need to. Are you a better human being if you refuse to take a tylenol when you have pain? Do not add to your suffering with guilt. It is useless. Rather, take the tools you are given to feel normal."
I hope I won't have to get on a high dose. I'll let you know how things go. Today's symptom of choice; palpitaions!! Urgh...

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